Friday, March 30, 2007


After getting up so early not even the appeal of the computer could keep Beauty awake

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Sleeping Beauty

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Beauty's bad hand, she loves to chew here hands!
She really loves the plaster.

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The other night night I went to a Tesco superstore late in the evening to buy things for school for the next day and I felt that I had walked into a nurses convention. I was surrounded by nurses who must have just finished their shift and were shopping on their way home.............whilst wearing their uniforms! I walked past 2 student nurses looking at clothes who were holding the clothes against their uniforms whilst looking in the mirror. I am glad that I did not confront them in the store as I probably would have been thrown out. Having had MRSA which the Doctor told me afterwards he didn't think would heal and a friend who died of MRSA, I feel very strongly about this subject. I would however like to admit that ONCE I did go home in uniform(but I went straight home and did not go shopping) and felt so guilty that I never did it again, Remember I was trained in a time that you couldn't go out wearing your uniform without your hat ! I still have my original cape! We were also told that we were not allowed to smoke whilst in uniform. Well that one certainly no longer applies!
I read this this morning,
NHS staff 'would not be patients
Nearly two thirds of health staff would not be happy to be a patient in their own NHS trust, a survey shows.The Healthcare Commission poll of more than 128,000 workers also found just 45% felt patients were a top priority.And the watchdog urged the NHS to "redouble efforts" to cut violence against staff with one in three reporting attacks in the last year.Patient groups said views on patient care were "deeply worrying" and caused by the financial pressures in the NHS.

I have worked on many wards and in many hospitals due to having done agency nursing and I have found that over 95% of nurses I have met are really good, hard working people. BUT sometimes I have gone to wards and found individual nurses who didn't get off their butts the whole time I was there. I am sure that this is the same wherever you work, whatever the occupation. The other nurses seem to run around like headless chickens , unable to do everything because of limited staff numbers.
From what I have seen, low standards usually arise from low staffing levels. The overworked staff are just not able to do everything that is asked of them.
Would I be happy to be a patient in the NHS? The only way you would get me in to a ward is if I were unconscious and it was an emergency situation.

The children at Beauty's school made a Jesus' tomb to have in the school assembly.

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I also read this
Storm in US over chocolate Jesus
A New York gallery has angered a US Catholic group with its decision to exhibit a milk chocolate sculpture of Jesus Christ.The six-foot (1.8m) sculpture, entitled "My Sweet Lord", depicts Jesus Christ naked on the cross.Catholic League head Bill Donohue called it "one of the worst assaults on Christian sensibilities ever".The sculpture, by artist Cosimo Cavallaro, will be displayed from Monday at Manhattan's Lab Gallery.The Catholic League, which describes itself as the nation's largest Catholic civil rights organisation,also criticised the timing of the exhibition."The fact that they chose Holy Week shows this is calculated, and the timing is deliberate," Mr Donohue said.

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Whatever the purpose the artist had for creating the structure, I actually think that the creation
of the statue has quite a symbolic message. As with Christmas, Easter has become more and more commercialised and many see it as merely a time to exchange chocolate eggs. Whatever your religion, this time of year -SPRING-is seen as a time of rebirth and new beginnings and whilst chocolate is wonderful at anytime of the year, a time to take stock and re-evaluate is good. OK ...........Hippie message over!
My children think I was born too late and should have been born earlier as they feel that I am a tree-hugging, flowers in my hair wearing, non-meat eating , wicker- weaving Hippie. Oh well, variety is the spice of life.
The Easter biscuits Beauty made in school.

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Beauty is now home for 2 weeks easter holidays.


KC's Blog said...

Hi there my name is Tina. I am the Mommy to an almost 6 year old profoundly Autistic kiddo as well. It is so nice to meet you! It is tough to find other Mommies who have profoundly Autistic children. Most of the Mom's I meet have high functioning children so it's nice to find a kiddo like my son K.C. and a Mom who is like me.
Your daughter is beautiful!
Nice to meet you!

Anonymous said...

My kids got a week off in March and 4 days for Easter. I wish they went most of the year 'round b/c summer with about 9 weeks off is too long. They are still discussing that but I think teachers are the biggest group against.

Sorry about her hand. The little one scratched himself raw around the lower back and hips with the chicken pox in Feb... what a mess.

Hopefully it heals up soon.

Did you manage to get her back into bed without waking her?? That's the hardest part. Hopefully she slept in for you this morning.


Melissa said...

What an adorable picture of her; I love pictures like that - just fall asleep mid-task because they're so sleepy. She's a cutie pie!

Steve said...

What?! A chocolate Jesus and no gingerbread crucifix? What were they thinking?!

LAA and Family said...

Great pictures! I have a collection of pictures of Samuel falling asleep in strange places. This happened quite frequently a few years ago. Wow, a 2 week break from school! Do you have extra help at home?


Hi Tina,
nice to meet you too.
My daughter is in a class of 7 children in a specialist autism unit, the others six are boys and all higher functioning so I know what you mean.

Hi Farmwifetwo
Our holidays are 2 weeks at Christmas and 2 weeks at Easter and a week for each half term and the summer is then 6 weeks.I am really glad that the summer is only 6 weeks and not 9 weeks. If the summer holidays were any longer I thing I would go mad.I don't know how you cope. Beauty was fine about going to bed but she didn't want to take off her dress though and so she slept in her school dress.

Hi Melissa
I have this wonderful picture of Beauty's eldest sister, taken about 22 years ago!(saying that makes me feel old). Anastasia was meant to be napping in her bedroom but got up and tried to get a toy by standing on the bottom drawer handle of her chest of drawers.And then she couldn't get back down, so she fell asleep with her head on her hands on the top of the chest of drawers and her feet still on the handle!

Hi Steve
Mmychildren have the same irreverent sense of humour as you and they were laughing like drains at the gingerbread comment.

Hi Mom Embracing Autism
afraid not on the extra help front but the 15 year old and 6 year old play together a lot.During the day my arthritis gets so bad that I just have to lie down until the inflammation dies down and at those times Fiona and Beauty are great at hanging out together.




An Irish Blessing

(A Blessing from St. Patrick)
May the road rise to meet you,

May the wind be always at your back,

May the sun shine warm upon your face,

May the rains fall soft upon your fields,

And, until we meet again,

May God hold you in the hollow of His hand.