Thursday, February 13, 2014


I have Brain Fog.
Old story.
It is a fibromyalgia thing.
Nothing exciting.

I have short term memory loss.
I have been accused of not listening on the phone.
Which is not true .
After three sentences the words fall off the cliff of my memory and my memory starts over.
So when you spend 15 minutes telling me how wonderful you were in work today and how crap everyone else was, just remember that all I remember is the bit about your work mate with bad breath, the cheese and pickle sandwich you made for lunch and how bad the traffic was!
And NO I  cannot remember anything about the multi-million pound deal you closed !!!!!!!

As for names ! 
I have to store a name and photo in my phone just to recall you.
Ask my girls, I can only remember who their friends are when they tell me their name and where they lived !

I recently started playing memory games online! 
They are so irritating, I would rather play Tetris which is something I play when I don' t want to think.
Plus I am trying to harness the power of Jane's Memory Palace but so far it is just somewhere new to store and lose information :(

What can I say ?
 I am always losing my glasses, I can have 2 pairs on my head and still be searching for a pair.
I am ALWAYS looking for something !

But even with Brain Fog I can get Missy and I up and out of bed and washed and dressed and fed and at school  on time-ish every day!

And it is the autistic love of order and routine that keeps me going.
Missy's OCD ways have saved my brain-fogged life.
Like our guinea pig boys who are no longer with us , when Missy is hungry she will not be ignored.
She has a routine to her life like a  train that once in motion will not stop until all stages have been passed and all goals achieved.

Thank you my best girl for the gifts your uniqueness brings :)

Tuesday, November 05, 2013


Missy is a teenager with the soul of a toddler! What I am trying to say is that her clothes are always dirty and sometimes she gets changed up to 5 times a day. I end up having to do at least 2 loads of washing a day !

I am so exhausted from it all that when the basics are done it is time for a nap......just so I can cope with Whirlwind Missy when she returns from school :)

Monday, November 04, 2013

Bonfire Night :)

In 2 days, Halloween will be over and the Halloween decorations can come down.
For Missy Halloween lasts from the start of October until the day after Bonfire  Night.
It lasts until after Bonfire Night as Bonfire Night has no decorations  of it's own.

Missy LOVES this time of year.

She also loves Diwali :) far as Missy is concerned, the day after Bonfire Night signifies the  start of Christmas !

And then Christmas last until Valentine's Day , well Missy thinks so anyway !!!!

Monday, August 26, 2013


As well as picture t shirts, Missy LOVES pretty dresses :)


Missy is a typical 12 year old girl and loves pretty clothes and make-up .
She also loves picture t shirts which is also a very good thing :)
It is good as Missy  plays like a 5 year old !
She LOVES to play in the garden and find rain water and tip it all over herself !
She LOVES to play with mud !
She LOVES to play with sand !
But most of all she loves to be creative !

It means using LOTS OF GLUE :)

Being creative means using lots of GLITTER :)

It means PAINTING :)

It means  making COOKIES

It means watching ART ATTACK :)

It means baking CAKES :)

 Running around and NEVER keeping still is also high on the list of things Missy likes to do :)



This photo was taken on a PHAB FUN DAY


All in all this means that Missy gets mucky and wet and sweaty and dirty EVERY DAY, and not just
 once a day !
Her daily record, including pjs is 6 changes in clothes :)
As I said, Missy's clothes have a tough life and I am very glad she loves picture t shirts as they are so
 easy to wash and dry :)

Monday, April 08, 2013


After five minutes of attempting to do some housework my back said,
or it would have if backs could speak!
On Saturday a disc in my back slipped  (a not unusual occurrence) and I have been in agony since.

If Pollyanna were here she would say something along the lines of,
'Be grateful that you have had at least three months without a slipped disc ' ,
 which is true but sadly I am not grateful and it does not ease the pain.

And if Cardiff Council's social services hatchet men were here they would say,
'Just be grateful that your daughter is in school , remembering that we consider school time as RESPITE time, and you have plenty of FREE time with nothing to do but   relax during RESPITE/SCHOOL time so don't expect any sympathy from us even  though we promised  extra help three months ago and never followed through on our promises ..........!

On a brighter note, the Easter holidays are over today and Missy was thrilled to be going back to school, it is always really nice when Missy is so very  FLAPPY HAPPY  she cannot keep still :)

Friday, April 05, 2013


When I  say I have done nothing all day I do not mean this

But this

This morning I have done the following

 Showered and dressed and fed Missy
 Washed and dressed and fed myself
 Picked up and cleared away all the rubbish, dirty dishes and dirty clothes
 Washed a load of clothes
 Washed a load of dishes
 Cleared and cleaned the kitchen sink and table

And yet if asked, I would say  I had done nothing.

My house still looks like a pinata filled with books and toys and clothes to be ironed and  DUST has exploded in every room of my house !
I truly believe that a new view on reality hits you when you have a child with autism and even if Anthea or Kim & Aggie wouldn't set foot in your house,
you don't really care :)

Wednesday, March 27, 2013


As far as Missy is concerned, ice cream comes in colours not flavours and she will only eat PINK or WHITE!
Until today :)
Whilst choosing a pudding  to buy in the local Farm Foods ,Missy discovered the chocolate bar ice creams and it was as if a light bulb turned on in her head !
We bought the Cadbury Cream Egg ice cream and I am sure if I had given her the tub she would have eaten it all.
Progress as far as Missy's selective eating is concerned may not always seem encouraging but it is days like this  that show there is light at the end of the tunnel.
Now if she would only  eat some fruit :)




An Irish Blessing

(A Blessing from St. Patrick)
May the road rise to meet you,

May the wind be always at your back,

May the sun shine warm upon your face,

May the rains fall soft upon your fields,

And, until we meet again,

May God hold you in the hollow of His hand.